Interested in getting involved with the Rare & Ready Coalition from the comfort of your home? Want to share your experience with the community? We invite you to share how Medicaid access has affected your rare disease journey. Every experience has the ability to have an impact on motivation and change.
Guidelines for your story
If you decide to share your story:
To have an impact, share your personal story in less than 300 words about a time when you had trouble accessing what you needed to live your best life
Maintain focus on your experience
Patient stories must not include: full names of medical staff or people; solicitation of medical advice; mention products and/or medications
Should you decide to share your story and email, please review and sign the release below. Once we have received your release, we will be in touch.
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Please check the Form for errors and resubmit.
Thank you for providing your contact information. A team member will follow up with details on how to share your story.